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 Terry Fox Day is an especially personal time for remembrance for some families in Manitoba.

At the age of nine, Madox Suzio passed away from a diffuse intrinsic pontine glioma (DIPG) brain tumor.

"He was so goofy," his mother, Suzanne Suzio, laughed. "Always full of life, he loved everybody. He was the kind of kid that, if he was at the playground and he saw someone alone, he would [beeline] it right to them and include them for everything.

"He was just goofy and fun-loving and always laughing and smiling. He really taught us how to enjoy life and laugh all the time."

Following his passing, Suzio and her husband began a non-profit organization to honour Madox's legacy and contribute to improving the outcomes for individuals diagnosed with the disease.

"We realized there was no hope, no cure, no treatment at all, and it's one of those rare brain tumors that no one is doing research on," said Suzio. "We felt very alone and abandoned and we wanted to change that."

In the past three years, Madox's Warriors has raised $85,000 towards a cure for DIPG brain tumors. They've also been able to bring about hope. Though no patients who have been diagnosed with the DIPG have survived yet, research has developed so that the life expectancy of someone with the brain tumor can be lengthened.

"Even though people are dying... they're not dying after five months like Madox did," Suzio explained.

Though Terry Fox passed away when Suzio was only a year old, she says the famous Canadian was an inspiration to her growing up. Fox passed away due to cancer at the age of 22, after running 5373 kilometers as part of his cross-Canada Marathon of Hope.

Now that Suzio's own life has been impacted by cancer, Fox's legacy is even more powerful for her and her family.

"He was only 18-years-old when he was diagnosed so he was still a kid," says Suzio. "I know a lot of people think that's an adult, but he was still a kid, and the fight he did for the awareness for cancer and for kids... it was phenomenal."

Suzio believes our current awareness of the disease can be largely attributed to Fox, his courage, and his lasting legacy.

"For him to have an amputated leg because of his bone cancer and for him to fight and run across Canada to raise that awareness and that struggle he went through, I don't think many of us would be aware... of the struggle families and kids go through."

With September being Childhood Cancer Awareness Month, Madox's Warriors will be hosting their 4th annual Superhero Run this year. Everyone is encouraged to come to the event dressed in costume or in some way paying tribute to a superhero.

"Madox was a huge, huge superhero fan," Suzio explained. "Almost all his clothing had superheroes, he would be in costume half the time when he was at home... we wanted to tie [the run] in with something he really enjoyed."

The 5-kilometer run will take place at Kildonan Park on September 8, 2018. More information on the run can be found here.